Noonan Syndrome

Welcome to the Noonan Syndrome Road Map

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FDA Approves Radicava (edaravone) to Treat ALS

Regenerative Neurobiology

ALS Treatment Updates

 

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Noonan Syndrome News

  • Life-changing surgeries brighten future for East Canton twins 23 Jul 2021 00:25 Fox 8 - Ohio EAST CANTON, Ohio (WJW) – The ability to hear just got a whole lot easier for the small but mighty Papacostas twins of East Canton, thanks to life-changing surgeries. “I’m Katrina.” “I’m Sophia,” the girls said, raising their hands. The 8-year-old twins …
  • The life and death of baby Isabella: 'I don't feel she ever had a chance' 17 Jul 2021 18:59 Stuff A baby dies and her mum is told it was because of a brain injury. She wasn’t told it might have been entirely preventable. Kirsty Johnston reports. When baby Isabella died, she was in her mother’s arms. It was difficult to cuddle the little girl properly, …
  • Hero Scots Labrador who stops autistic boy from self-harming nominated for award 16 Jul 2021 14:21 Daily Record & Sunday Mail A devoted assistance dog who has transformed the life of his young autistic owner while also stopping him from self-harming has been nominated for a top award. Four-year-old pooch Sauce has become best pals with little Kearyn Adamson after being trained to …
  • Can HGH Supplements Help You Build Muscle and Lose Weight? Here’s What To Know 06 Jul 2021 18:23 The Katy News - Texas The human growth hormone (HGH) is a naturally occurring hormone found in the human body responsible for the growth and development of children up to their late-teenage years. HGH regulates various bodily functions like muscle growth, metabolism, tissue …
  • Hailey's heart 13 Jun 2021 13:39 Post Bulletin Tracie was thrilled when she became pregnant with Hailey. Her anticipation grew with every appointment; she was excited to meet her daughter. There were no complications or indications that anything was out of the ordinary or wrong. That changed quickly. …
  • Family of brave Scots tumour-scan boy facing five months of agony 06 Jun 2021 03:40 Daily Record & Sunday Mail A family face an agonising wait to find out whether their young son, who is slowly going blind, will need chemotherapy for an inoperable tumour. Eight-year-old Kearyn Adamson, who is nicknamed “Kicky”, was born with a number of life-limiting conditions …
  • Ted Cruz tears into the 'woke, emasculated' military that's turning into pansies' 21 May 2021 22:28 Daily Mail Sen. Ted Cruz said he was standing up for the world's most ferocious fighting force as he doubled down on his attacks on a 'woke' U.S. Army recruiting video that told the story of how a 'little girl raised by two moms' grew up to become …
  • She made us cry with that Qantas song. Now she reveals her own pain 07 May 2021 16:31 The Sydney Morning Herald Since then, Marlow has popped up on YouTube and other streaming platforms and supported or performed with the Australian Youth Orchestra, Katie Noonan, Clare Bowditch, Matt Corby, Meg Mac and Thirsty Merc. This month she finally gets to do the Big Reveal, …
  • Josling heading to World Games in 2022 05 May 2021 23:45 The Expositor Breadcrumb Trail Links Sports Local Sports Author of the article: Brian Smiley Brantford's Meghan Josling will be heading to Russia in January as part of the Special Olympics Canada team that will compete at the World Games. Submitted Article content …
  • Top Drugs Losing Patent Exclusivity in 2021 29 Apr 2021 06:57 Patent Docs By Kevin E. Noonan -- Earlier this month, Eric Sagonowsky reviewed the top ten drugs in the U.S. (in terms of sales) losing patent exclusivity in an article published by Fierce Pharma. These drugs are Lucentis (Genentech/Roche), Bystolic (AbbVie/ …

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