Noonan Syndrome

Welcome to the Noonan Syndrome Road Map

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FDA Approves Radicava (edaravone) to Treat ALS

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Noonan Syndrome News

  • Alan Jones: Shock jock has history of anti-women comments 17 Aug 2019 03:14 Age Connie Beswick, West Hobart Why is he allowed to get away with so much? We know about the incitement of the Cronulla race riots. We know about the violent threats against a former prime minister. We know about calling Lebanese Muslims "vermin"…
  • Centrelink robodebt raised against dead disability pensioner 28 Jul 2019 19:21 Australian Broadcasting Corporation Posted July 29, 2019 05:06:25 Centrelink is pursuing the debt of a deceased disability pensioner and other vulnerable people as part of its controversial "robodebt" scheme. Key points: Disability pensioner who died six months ago received $6000 …
  • UCB, Inc. v. Watson Laboratories Inc. (Fed. Cir. 2019) 17 Jul 2019 05:07 Patent Docs By Kevin E. Noonan -- The doctrine of equivalents, a Supreme Court-created patent doctrine of vintage similar to inequitable conduct, arose in Graver Tank & Mfg. Co. v. Linde Air Products Co., 339 U.S. 605 (1950) (an uncharacteristically pro-patent …
  • Notable raises $40 million to personalize cancer drug regimens 16 Jul 2019 13:22 VentureBeat Notable Labs, a Foster City, California-based provider of personalized drug combination testing for cancer patients, today revealed that it’s closed a $40 million series B round co-led by B Capital Group and LifeForce Capital, with participation from B …
  • Researchers Uncover Pathways Leading to Heart Defects in Genetic Syndrome 12 Jul 2019 19:56 HealthCanal.com Two molecular signaling pathways underlie the cardiac defects associated with one type of the inherited disorder Noonan syndrome (NS), researchers from Masonic Medical Research Institute, Beth Israel Deaconess Medical Center and Weill Cornell Medicine find …
  • ‘That’s the reason why I do it’ — NHL vs. Docs scoring for local kids, families 10 Jul 2019 23:01 Sudbury Star Andrew McIntyre says he’s 13, then adds with a smile that he knows he doesn’t look it. He lives with Noonan syndrome, a genetic condition that can cause heart defects, bleeding problems and skeletal malformations, as well as short stature. But it certainly …
  • One woman reveals the toll of having a miracle baby 10 Jun 2019 22:33 Mail on Sunday Standing in the hospital bathroom, I stared in the mirror and steeled myself. ‘Is this happening?’ I asked. ‘Am I going to let them cut into my unborn baby?’ The answer was yes. Less than a week ago, my husband Phil and I had been innocently making a list …
  • Why bankers can't stop running 09 Jun 2019 05:59 New Zealand Herald "You must love running," people often comment when they hear I've signed up for another marathon or see me leaving the office for a jog along New York's Hudson River path. There are certainly many who do. Tim Chichester, a teacher who has …
  • Fraser bemoans catch-and-release courts 31 May 2019 07:29 Recorder and Times Police Chief Scott Fraser (left) and Deputy Chief Mark Noonan at police services board meeting on Thursday. (WAYNE LOWRIE/The Recorder and Times) Police Chief Scott Fraser is frustrated by a catch-and-release justice system that sees his officers nab …
  • Minister's refusal to allow child attend special summer school scheme prompts court challenge 21 May 2019 10:51 Breaking News from Ireland A High Court challenge has been brought against the refusal of the Minister for Education to allow a young child with "complex educational needs" to attend school during the summer holidays. The action has been taken on behalf of a six-year-old …

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