Amyotrophic Lateral Sclerosis (ALS)

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FDA Approves Radicava (edaravone) to Treat ALS

Regenerative Neurobiology

ALS Treatment Updates

 

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ALS Groups

 

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ALS Updates

  • Luton’s legacy will live on 25 Feb 2021 18:36 The Gleaner Plans are currently in the pipelines to ensure that the legacy of former Harbour View and national senior team striker, Luton Shelton, stays alive, said wife Bobbette Shelton. The widowed Shelton, speaking to The Gleaner at yesterday’s final viewing of the …
  • Retrotope Granted Rare Pediatric Disease Designation from FDA for Lead Development Candidate, RT001, in Two Life-Threatening Neurodegenerative Indications 25 Feb 2021 12:00 GlobeNewswire, Inc. Company Currently Conducting Late-Stage Clinical Trials in Both Infantile Neuroaxonal Dystrophy (INAD) and Friedreich’s Ataxia (FA) RT001 also Granted Fast Track Designation by FDA in FA; Orphan Drug Designation by European Medicines Agency in INAD LOS …
  • 'It's very humbling': Community supports, raises money for JSO officer diagnosed with ALS 25 Feb 2021 09:20 First Coast News Jimmy Judge was diagnosed with ALS in May. Friends of his in the community have held fundraisers and raised money to help him pay medical bills. JACKSONVILLE, Fla — He has protected and served Jacksonville for three decades, and now the community is coming …
  • Obituaries, Week of Feb. 27, 2021 25 Feb 2021 06:01 The Tablet Beloved Father, Will Be Missed For His Sense of Humor, Kindness, Warm Smile Father Paul Palmiotto, a retired priest of the Diocese of Brooklyn, died on Feb. 15. He was 68. Father Paul Palmiotto Born on May 15, 1952, he was ordained to the Priesthood on …
  • Timlin race to be virtual again in ’21 25 Feb 2021 02:25 Hopkinton Independent - Massachusetts Runners head out at the start of the Timlin 5K in 2019, the last year the race was held live. FILE PHOTO/JOHN CARDILLOOrganizers of the Sharon Timlin Memorial Event, normally held outside Hopkinton High School, are planning for a virtual event again …
  • Newborn at Woman's Hospital receives life saving gene therapy 24 Feb 2021 17:16 WGNO - Louisiana BATON ROUGE, La. (BRPROUD) – At one week old, baby Lexa at Woman’s Hospital received life saving gene therapy for her muscle disease called Spinal Muscular Atrophy (SMA). “It’s the most common genetic cause of death in the first year of life,” said …
  • Ask the Doctors: Cramp-fasciculation syndrome has little research 23 Feb 2021 15:52 Times Standard Dear Doctor: I am a 79-year-old woman, and I have in the past had night cramps that went away when I stamped my foot. When it got worse, including a burning sensation, a muscle relaxant helped. It’s back again, and my neurologist says I have cramp- …
  • Orphazyme announces presentation of 2020 Annual Report 23 Feb 2021 14:10 GlobeNewswire, Inc. Orphazyme A/S Investor news                                                                                                        No. 03/2021 …
  • Coya Therapeutics™ Announces Formation of Scientific Advisory Board 23 Feb 2021 12:00 GlobeNewswire, Inc. HOUSTON, Feb. 23, 2021 (GLOBE NEWSWIRE) -- Coya Therapeutics, Inc., (Coya™), a clinical-stage biotechnology company developing first-in-class approaches that utilize autologous regulatory T cells (Tregs) and allogeneic exosome therapeutics for …
  • Recent Analysis on Amyotrophic Lateral Sclerosis Clinical Trials 23 Feb 2021 01:30 GlobeNewswire, Inc. Los Angeles, USA, Feb. 22, 2021 (GLOBE NEWSWIRE) -- Recent Analysis on Amyotrophic Lateral Sclerosis Clinical Trials  DelveInsight reports a complete review on Current and Emerging Therapies in the Amyotrophic Lateral Sclerosis pipeline enriched through …
  • The 'Quality of Life' error 21 Feb 2021 14:41 Pilot - Massachusetts Making Sense of Bioethics Friday, February 19, 2021Culture Help us expand our reach! Please share this article on social media Instead of making quality of life judgments about people, we should be making "quality of treatment" judgments for …
  • How long will a healthy older person live? A substance in blood may provide a clue 18 Feb 2021 22:36 Scope - Standford Medicine Levels of a substance in nonagenerians' and centenarians' blood accurately predict how much longer they're going to live. The substance comes from the brain. The findings, in a study published in Nature Aging, could prove useful in developing …
  • Former All Saints pastor and community advocate, Fr. Stephen Jasso, TOR, dies at 88 16 Feb 2021 21:19 North Texas Catholic FORT WORTH — Father Stephen Jasso, TOR, retired pastor of All Saints Catholic Church and much-respected advocate for the region’s growing Hispanic population, always taught by example. When debilitating illness robbed his speech and mobility, there were …
  • Retrotope Appoints Rick E Winningham as Chairman of Board of Directors in Advance of Key Clinical Trial Data Readouts 11 Feb 2021 12:00 GlobeNewswire, Inc. LOS ALTOS, Calif., Feb. 11, 2021 (GLOBE NEWSWIRE) -- Retrotope, a clinical-stage biopharmaceutical company focused on the development of novel, first-in-class therapies for degenerative diseases, today announced the appointment of Rick E Winningham as …
  • LoAnn Kay (Johns) Dale, 52 10 Feb 2021 14:27 Tracy Area Headlight Herald LoAnn Dale LoAnn Kay (Johns) Dale was born April 11, 1968 to Joseph and Rose (Rogge) Johns in Lyon County, Tracy Minnesota. Loie was the youngest of five children in the family. She grew up on the family farm outside of Tracy and attended Tracy High School …
  • Yumanity Therapeutics Provides Update on Its Lead Parkinson’s Disease Clinical Program, YTX-7739 10 Feb 2021 13:00 GlobeNewswire, Inc. Results reported of the single ascending dose study in healthy volunteers Enrollment completed of the multiple ascending dose study in healthy volunteers; results expected by end of Q1 2021 Dosing initiated in a Phase 1b trial in patients with Parkinson’s …
  • Sonoma County sports writer, authority on horse racing Howard Senzell dies at 74 09 Feb 2021 03:31 California State News Howard Senzell knew his ponies. For decades, Senzell worked with and wrote about thoroughbred race horses and their trainers, owners and jockeys. Many summers in Santa Rosa, bettors on races at the Sonoma County Fair consulted the recommendations in his …
  • Albany County will not add more categories of essential workers to get vaccinated 05 Feb 2021 15:38 Altamont Enterprise - New York ALBANY COUNTY — Local health departments can add to the list of categories of essential workers eligible to receive COVID-19 vaccinations, Governor Andrew Cuomo said on Feb. 2 “If a local health department, county government wants to add to their — what’s …
  • Orphazyme to showcase data on arimoclomol in Niemann-Pick disease Type C during the 2021 Annual WORLDSymposium™ 04 Feb 2021 12:30 GlobeNewswire, Inc. Orphazyme US Investor news                                                                                                          No. 02/2021 …
  • Cytokinetics Announces Recipients of Third Annual Communications Fellowship Grants 02 Feb 2021 12:30 GlobeNewswire, Inc. SOUTH SAN FRANCISCO, Calif., Feb. 02, 2021 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced the recipients of its third annual Communications Fellowship Grant program, intended to support increased capacity in communications, …

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