ReSource Rare

ReSource Rare is a one-of-a-kind tool designed to help rare patients and caregivers locate the resources they need to reach and manage a diagnosis.

Our team is working day and night to gather the world’s best rare disease resources, from specialists and medical professionals to the latest treatment options and research developments.

Every Rare Disease page on our site includes:

  • Search our site by keyword, symptoms, or diagnosis
  • Specialists and other medical professionals
  • Private discussion forums and groups where users can network with other patients and caregivers
  • Non-Profit Foundations
  • Legitimate and accurate medical provider reviews
  • Insurance tips, copay assistance programs
  • The latest treatment news and options
  • A summary of the best local resources in your area

Have a helpful rare disease resource to share?


We're not around right now. But you can send us an email and we'll get back to you, asap.


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