Non-Profit Organization Category: Rare Diseases
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- Support Services Provided
- Supporting Patients Diagnosed With
The Cambria Lord Foundation is a non-profit organization dedicated to providing support and resources to families affected by rare disease.
Over 30 million Americans live with a rare disease and 15 million of those are children. Rare disease has become a hot topic in the US on the political front as lawmakers in the House have launched a Rare Disease Caucus and the Senate is following suit.
At the CLF, our current focus in on promoting initiatives and policies that will make a difference for the rare community. Our current efforts include establishing a Kansas State Rare Disease Advisory Council and creating a National Emergency Treatment Database for Rare Disease Patients.
Help us raise awareness for rare diseases and the need for a National Emergency Treatment Database by joining our #Wear4Rare365 campaign, launching on August 1st!
Address: PO Box 13177
Support Services Provided:
Support for rare disease patients and families.
Supporting Patients Diagnosed With: