All Events

  • Sensory Sundays at Chuck E. Cheese - July 2, 2017

    Date: July 2, 2017

    Time: 11:00 am to 12:00 pm

    Event Host:

    Chuck E. Cheese

    Sensory Sensitive Sundays Chuck E. Cheese’s is proud to support families who have children with autism and special needs. We now offer a sensory-friendly experience on the first Sunday of every month. Our trained and caring staff is there to make sure each guest has a fun filled visit. The Sensory Sensitive Sundays experience includes: 1. Less crowding and noise 2. Dimmed lighting 3. Show and music turned off or down 4. Limited appearances by Chuck E. 5. Food and games are offered

  • 4th Annual Noonan Syndrome 5K Family Walk and Kids Dash

    Date: July 9, 2017

    Time: 8:00 am to 12:00 pm

    Join us for a day to support Drew and his friends that are affected by Noonan Syndrome. This day is the perfect excuse to get out there with your family and friends and help our family raise money for those affected with Noonan Syndrome. This year we will be doing a family walk, kid dash, there will be music and entertainment and a bouncy house. Please consider joining us in our fight to raise money for Noonan Syndrome and as importantly RAISE AWARENESS!! Sponsorship Opportunites If you are interested in a sponsorship opportunity, Please contact Katie@teamnoonan.org for sponsorship forms. Event Schedule Registration: 7:30am5K Run: 8:30am5K Family Walk: 9:30am (Dogs, strollers, wheelchairs, ALL WELCOME)Kid Fun Run: Immediately following the 5K WalkMemorial Balloon Release: 11:00am

  • MAGIC Foundation National Convention (Growth Hormone Disorders)

    Date: July 20, 2017 - July 23, 2017

    Event Host:

    The MAGIC Foundation

    MAGIC’s Annual Convention is the highlight of the year for the foundation and our families. The convention is an event that has been going on for decades. Lifelong friendships have been made through the convention. It’s the ideal event for children to be around other children with the same disorders. Parents find the convention to be incredibly supportive as well, for the same reason. They meet others going through the same experiences. Here are some interesting points about last year’s convention: Over 1,000 attendees 35 Educational Speakers Exhibits-giving parents the opportunity to meet with pharmaceutical representatives and home health care providers Social and networking activities

  • Sensory Sundays at Chuck E. Cheese - August 6, 2017

    Date: August 6, 2017

    Time: 11:00 am to 12:00 pm

    Event Host:

    Chuck E. Cheese

    Sensory Sensitive Sundays Chuck E. Cheese’s is proud to support families who have children with autism and special needs. We now offer a sensory-friendly experience on the first Sunday of every month. Our trained and caring staff is there to make sure each guest has a fun filled visit. The Sensory Sensitive Sundays experience includes: 1. Less crowding and noise 2. Dimmed lighting 3. Show and music turned off or down 4. Limited appearances by Chuck E. 5. Food and games are offered

  • Sensory Sundays at Chuck E. Cheese - September 3, 2017

    Date: September 3, 2017

    Time: 11:00 am to 12:00 pm

    Event Host:

    Chuck E. Cheese

    Sensory Sensitive Sundays Chuck E. Cheese’s is proud to support families who have children with autism and special needs. We now offer a sensory-friendly experience on the first Sunday of every month. Our trained and caring staff is there to make sure each guest has a fun filled visit. The Sensory Sensitive Sundays experience includes: 1. Less crowding and noise 2. Dimmed lighting 3. Show and music turned off or down 4. Limited appearances by Chuck E. 5. Food and games are offered

  • Sickle Cell Family Day

    Date: September 9, 2017

    Time: 12:00 am to 12:00 am

    On-site registration and packet pick-up will begin at 9 a.m. and the race starts at 10 a.m. Awards will be given to the top male and female finishers in various age categories and teams (based on size and amount of funds raised).   Register by September 5th to qualify for early-bird and group discounts! (After September 5th, registration will be available on-site on the day of the event for $25/person.) Picnic & Festivities: FREE food! Yes! Following the 5K, we are hosting our 8th annual Sickle Cell Family Day picnic with inspirational speakers, health information, live entertainment, food, fun, games, music, prizes and activities for all ages designed to increase sickle cell awareness and connect families touched by sickle cell with each other. All are welcome!  Food is served on a first come, first served basis. A Word About T-Shirts: We order t-shirts based on the projected number of participants and try our best to have enough to go around.  🙂 5K participants get 1 free t-shirt with their registration fee as long as supplies last.  T-shirts and size preferences are not guaranteed.

  • Party with a Purpose: B&Os Noonan Syndrome Foundation Fundraiser

    Date: September 23, 2017

    Time: 11:30 am to 3:00 pm

    Save the date! My parents and I will be hosting a raffle and/or silent auction to raise funds for the Noonan Syndrome Foundation. Ticket prices for the event will be announced soon! Lunch will be servedl! This will be a family friend event! Bring your family and friends. More details to come… As you all know, my two sons were diagnosed with Noonan Syndrome in 2014 and 2015. It is our turn to give back to an organization that has provided so much to us.

  • Sensory Sundays at Chuck E. Cheese - October 1, 2017

    Date: October 1, 2017

    Time: 11:00 am to 12:00 pm

    Event Host:

    Chuck E. Cheese

    Sensory Sensitive Sundays Chuck E. Cheese’s is proud to support families who have children with autism and special needs. We now offer a sensory-friendly experience on the first Sunday of every month. Our trained and caring staff is there to make sure each guest has a fun filled visit. The Sensory Sensitive Sundays experience includes: 1. Less crowding and noise 2. Dimmed lighting 3. Show and music turned off or down 4. Limited appearances by Chuck E. 5. Food and games are offered

  • Kansas Walk for CURED

    Date: October 7, 2017

    Time: 8:00 am to 12:00 pm

    Campaign Urging Research for Eosinophilic Disease SAVE THE DATE CURED(Campaign Urging the Research of Eosinophilic Disease) is a not for profit foundation dedicated to those suffering from Eosinophilic Gastrointestinal Diseases (EGID). Please join us in our Family Fun Walk. Leah Rivers has started this fundraiser event I am assisting her in our endeavor along with several others as we search for a cure for our children. We will be updating the information as we get everything together. Please sign up as going or interested to receive the updates. You can find more info on CURED at curedfoundation.org We are also looking for sponsors to help with costs, donations of bottles of waters, printing of flyers, purchasing awareness materials, etc. If you have or no someone who has a business that may be willing to help please message me. We look forward to seeing you all there.

Showing Events 1-10 of 17

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