All Events

  • KC Kids Marathon Rockin’ Runners All Abilities Team

    Date: October 21, 2017

    Time: 9:00 am to 12:00 pm

    We Rock The Spectrum Kids Gym is excited to sponsor the KC Kids marathon Rockin’ Runners all abiliites team. A fun way to get your child active and participate in Kansas City’s largest youth marathon! Each participant is encouraged to “train” for their marathon by completing 25 miles of walking or running during their training period and complete their last 1.2 mile as a group at the KC Kids marathon on Saturday October 21st at Crown Center. Team participation will include >Free registration for individuals with a developmental diagnosis >Weekly group runs/walks (great way to get active and meet others) >Health & Wellnes resource fair that will provide parents and caregivers information about accessible programs and resources that promote acitve and healthy lifestyles for those with developemental differences. >Completion certificate day of the race JOIN THE TEAM 1. Visit: https://mysportkc.org/Register/groups/default.aspx?newgroup=true&event=39130&etcm=PeNoNbxZuzN0JG0dap9vQoBJ/vBTrMXbrSducpRHbkM=&smt= 2. On the registration page select “Join an Existing Team” 3. Select ROCKIN’ RUNNERS ALL ABILITIES TEAM from the drop down menu 4. Select “Join” and Continue with steps 2 & 3 to complete your registration. 5. THERE SHOULD BE NO FEES DUE. If you are prompted to pay please email register@kcmarathon.org. Please DO NOT PAY a registration fee. NO reimbursements will be given if payment are made. TEAM FAQ Who can participate? Any individual with a developmental diagnosis Will there be volunteers available to assist my child if I cannot? Yes. please email info@werockthespectrumkansascity.com following your team registration to indicate your child will need a running buddy. Is there an age limit? No. Any individual with a developmental diagnosis can participate with our team regardless of age. Does it cost? No, the team is sponsored by We Rock The Spectrum KC. Can parents or a companion participate? Yes. When you register you will need to indicate you are the “accompaning adult”. There will not be a registration fee for accommpanying adult. You do not need your own race bib in order to accompany the individual on the race route. Can siblings participate? The free team registration is only avalaible to those with a developmental diagnosis. Siblings are welcome to run the race with us the day of but will need to complete the individual registration process and pay the required participation fees. Are running strollers or wheel chairs allowed? Yes. Are service dogs allowed? Yes Do you have to complete the training? No. The goal is to encourage activity Read more [...]

  • Portland World Psoriasis Day Psuperhero MeetUp!

    Date: October 28, 2017

    Time: 11:30 am to 1:30 pm

    World Psoriasis Day is Sunday, October 29 and we want to commemorate the day by having a Psuperhero MeetUp on Saturday, October 28! We’ll meet at our usual spot, the Hawthorne Lucky Lab because of its central location, ample parking and plenty of table space. And as always the MeetUp is your opportunity to rekindle some friendships and make some new ones. In addition, we’re going to have some extra fun with this MeetUp and invite you (although not required) to dress up as your favorite Psuperhero or Psidekick. For those who dare to wear a costume and participate in a little cosplay you’ll be eligible for some fun prizes including a $50 Gift Card! For those who prefer to show up dressed as your magnificent selves you can help select our prize winners. Come join us for some laughs, connecting with others sharing your struggles with PsO/PsA and for a fun way to commemorate World Psoriasis Day! If the Psuperhero costumes don’t give us away look for the MeetUp and NPF logos on the table signage to find us. See you Saturday, October 28!

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    D/FW IH Meet-up

    Date: November 4, 2017

    Time: 6:00 pm to 12:00 am

    If you are in the Dallas / Ft Worth area or can get to D/FW, we would love to have dinner with you!! This is open to everyone with IH/PTC and any of it’s sister illnesses. It’s great to get together with people who understand what it’s like living life with a chronic illness. Watch this event for details on where it will be held.

  • International Conference on Psoriasis

    Date: December 8, 2017 - December 9, 2017

    Time: 9:00 am to 12:00 pm

    The International Conference on Psoriasis during December 08-09, 2016 at Dallas, USA hosted by OMICS International Conferences. The purpose of the conference is to elucidate the disease from a number of scientific aspects. Nearly three percent of the world’s population, men, women, and children, even newborn babies, endure the symptoms of psoriasis. Many tolerate constant pain from cracking and bleeding skin.

  • Rare Giving Tuesday February 28, 2017 - February 28, 2018

    Date: February 28, 2018

    Our goal is to accelerate research to develop evidence-based therapeutics for the treatment and long-term cure for synaptic Ras-GTPase activating protein (SYNGAP1). A primary clinical challenge for SYNGAP1 patients is the management of retractable seizures. Early detection and intervention would prevent the detrimental effects of seizures that can damage neural connections and elevate symptoms that come from having SYNGAP1 mutations. Secondly, is to raise awareness of SYNGAP1 (MRD5) and unite patient families. Our goals of creating a standard of care and educating researchers/medical professionals will improve time to early diagnosis. With guidance from our scientific advisory board our goal is to creating a behavior/medical profile for clinicians. This tool will also accelerate identification of other SYNGAP1 individuals. It is crucial that an early diagnosis is made as we have seen that early therapy can be incredibly valuable to the development of our special children. Lastly, we aim to educate families and clinicians with data collected from our Natural History study to create customized treatment plans that can result in the best outcomes for progress made by each child.

  • National Autism Awareness Month - April 1, 2018

    Date: April 1, 2018 - April 30, 2018

    Event Host:

    Autism Society

    Nearly a quarter century ago, the Autism Society launched a nationwide effort to promote autism awareness, inclusion and self-determination for all, and assure that each person with ASD is provided the opportunity to achieve the highest possible quality of life. This year we want to go beyond simply promoting autism awareness to encouraging friends and collaborators to become partners in movement toward acceptance and appreciation. Let’s embrace a new perspective. For over 50 years we have worked in communities (both large and small) to ensure our actions, through our services and programming, supported all individuals living with autism. Let’s expand this work to focus on the rest of us – ensuring acceptance and inclusion in schools and communities that results in true appreciation of the unique aspects of all people. We want to get one step closer to a society where those with ASDs are truly valued for their unique talents and gifts. Join us in celebration for 2017 National Autism Awareness Month! National Autism Awareness Month represents an excellent opportunity to promote autism awareness, autism acceptance and to draw attention to the tens of thousands facing an autism diagnosis each year.

  • Team NPF Cycle in the Willamette Valley 2018

    Date: June 10, 2018

    Time: 6:30 am to 5:00 pm

    2018 Team NPF Cycle in the Willamette Valley is a fundraising ride beginning and ending at Riverview Park in Independence, Oregon. The ride takes place on Sunday, June 10, 2018 and will offer three routes to accommodate riders of all levels. You will have the choice between a Short Route (8 miles), Mid Route (26 miles) or a Metric Century (62 miles). Your choice of routes will include rest stops, SAG vehicles and bike mechanics. Upon completing your ride, enjoy lunch, beer, wine and live music as we celebrate your accomplishments and success towards finding a cure for psoriatic disease. Become a Team NPF Cycle Cure Champion and join an exclusive group of cyclists who are leading the charge to find a cure for psoriatic disease. Register: www.TeamNPF.org/WVcycle Registration Fee: $25 Fundraising Minimum: $150 (Kids 12 and under are not subject to the $150 fundraising minimum.) Contact: Brian Willms, bwillms@psoriasis.org, 503-546-8394

Showing Events 1-10 of 18

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