All Events

  • Rare Giving Tuesday February 28, 2017 - February 28, 2018

    Date: February 28, 2018

    Our goal is to accelerate research to develop evidence-based therapeutics for the treatment and long-term cure for synaptic Ras-GTPase activating protein (SYNGAP1). A primary clinical challenge for SYNGAP1 patients is the management of retractable seizures. Early detection and intervention would prevent the detrimental effects of seizures that can damage neural connections and elevate symptoms that come from having SYNGAP1 mutations. Secondly, is to raise awareness of SYNGAP1 (MRD5) and unite patient families. Our goals of creating a standard of care and educating researchers/medical professionals will improve time to early diagnosis. With guidance from our scientific advisory board our goal is to creating a behavior/medical profile for clinicians. This tool will also accelerate identification of other SYNGAP1 individuals. It is crucial that an early diagnosis is made as we have seen that early therapy can be incredibly valuable to the development of our special children. Lastly, we aim to educate families and clinicians with data collected from our Natural History study to create customized treatment plans that can result in the best outcomes for progress made by each child.

  • National Autism Awareness Month - April 1, 2018

    Date: April 1, 2018 - April 30, 2018

    Event Host:

    Autism Society

    Nearly a quarter century ago, the Autism Society launched a nationwide effort to promote autism awareness, inclusion and self-determination for all, and assure that each person with ASD is provided the opportunity to achieve the highest possible quality of life. This year we want to go beyond simply promoting autism awareness to encouraging friends and collaborators to become partners in movement toward acceptance and appreciation. Let’s embrace a new perspective. For over 50 years we have worked in communities (both large and small) to ensure our actions, through our services and programming, supported all individuals living with autism. Let’s expand this work to focus on the rest of us – ensuring acceptance and inclusion in schools and communities that results in true appreciation of the unique aspects of all people. We want to get one step closer to a society where those with ASDs are truly valued for their unique talents and gifts. Join us in celebration for 2017 National Autism Awareness Month! National Autism Awareness Month represents an excellent opportunity to promote autism awareness, autism acceptance and to draw attention to the tens of thousands facing an autism diagnosis each year.

  • Team NPF Cycle in the Willamette Valley 2018

    Date: June 10, 2018

    Time: 6:30 am to 5:00 pm

    2018 Team NPF Cycle in the Willamette Valley is a fundraising ride beginning and ending at Riverview Park in Independence, Oregon. The ride takes place on Sunday, June 10, 2018 and will offer three routes to accommodate riders of all levels. You will have the choice between a Short Route (8 miles), Mid Route (26 miles) or a Metric Century (62 miles). Your choice of routes will include rest stops, SAG vehicles and bike mechanics. Upon completing your ride, enjoy lunch, beer, wine and live music as we celebrate your accomplishments and success towards finding a cure for psoriatic disease. Become a Team NPF Cycle Cure Champion and join an exclusive group of cyclists who are leading the charge to find a cure for psoriatic disease. Register: www.TeamNPF.org/WVcycle Registration Fee: $25 Fundraising Minimum: $150 (Kids 12 and under are not subject to the $150 fundraising minimum.) Contact: Brian Willms, bwillms@psoriasis.org, 503-546-8394

  • National Autism Awareness Month - April 1, 2019

    Date: April 1, 2019 - April 30, 2019

    Event Host:

    Autism Society

    Nearly a quarter century ago, the Autism Society launched a nationwide effort to promote autism awareness, inclusion and self-determination for all, and assure that each person with ASD is provided the opportunity to achieve the highest possible quality of life. This year we want to go beyond simply promoting autism awareness to encouraging friends and collaborators to become partners in movement toward acceptance and appreciation. Let’s embrace a new perspective. For over 50 years we have worked in communities (both large and small) to ensure our actions, through our services and programming, supported all individuals living with autism. Let’s expand this work to focus on the rest of us – ensuring acceptance and inclusion in schools and communities that results in true appreciation of the unique aspects of all people. We want to get one step closer to a society where those with ASDs are truly valued for their unique talents and gifts. Join us in celebration for 2017 National Autism Awareness Month! National Autism Awareness Month represents an excellent opportunity to promote autism awareness, autism acceptance and to draw attention to the tens of thousands facing an autism diagnosis each year.

Showing Events 1-10 of 14

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