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Affected Population:
Genetics
Marshall Medical Sout Read more [...] Here at the Read more [...] Accurate diagnosis an Read more [...] Children’s Read more [...]
Marshall Medical Center South
Boaz
Alabama
35957
United States
Cincinnati Center for Eosinophilic Disorders at Cincinnati Children’s
Cincinnati
Ohio
45229
United States
Eosinophilic Gastrointestinal Disorders Clinic at Texas Children’s Hospital
Houston
Texas
77030
United States
Eosinophilic Gastrointestinal Disorders Clinic – Monroe Carell, Jr. Children’s Hospital at Vanderbilt
Nashville
Tennessee
37232
United States
Children’s Mercy Hospital Autism Services
Kansas City
Missouri
64108
United States
United Blood Services Las Vegas
Las Vegas
Nevada
89117
United States
United Blood Services Henderson
Henderson
Nevada
89014
United States
Contact these non-profit organizations to learn more about XP:
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XP Treatment Case Studies
XP Patient and Caregiver Support Groups Across the Web
Related Terms:
Eye of the Tiger
MRI
Iron accumulation
NBIA Disorders
Pantothenate Kinase-Associated Neurodegeneration (PKAN), a form of Neurodegeneration. Neurodegeneration with Brain Iron Accumulation (NBIA) develops when iron accumulates in the brain resulting in nerve damage and other debilitating symptoms. PKAN is the most common form of NBIA and 30 to 50% of MBIA patients are diagnosed with PKAN.
Also referred to as:
- Hallervorden-Spatz Syndrome
- HARP
- HSS
- NBIA1
- neurodegeneration with brain iron accumulation type 1
- Pigmentary Degeneration of Globus Pallidus, Substantia Nigra, Red Nucleus
Looking for the PKAN My Med Team Social Network?
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