Atypical Pantothenate Kinase-Associated Neurodegeneration (PKAN)

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PKAN Updates

  • Sabah DAP fields two native women Lasimbang to fight for Kepayan seat 09 Apr 2018 00:42 The Malaysian Star KOTA KINABALU: Former Suhakam commissioner and ex-Sabah Bersih chairman Jannie Lasimbang has been named Sabah DAP’s candidate for the Kapayan state seat. Lasimbang, 56, a Kadazandusun from Penampang, was named along with Murut lawyer Noorita Sual, 38, who …
  • 'Local bosses risk being penalised' 20 Mar 2018 08:08 Daily Express 'Local bosses risk being penalised' Published on: Tuesday, March 20, 2018 Kota Kinabalu: Parti Kerjasama Anak Negeri urged the Sabah Government to look into the problems faced by local employers relying on foreign workers to sustain their business …
  • Feds Reveal “Pharma Bro” Shkreli’s Unmonitored Drug Trial in Cyprus 08 Mar 2018 11:20 National Herald By TNH Staff March 8, 2018 This courtroom sketch shows former pharmaceutical CEO Martin Shkreli, left, seated next to his lawyer Ben Brafman in federal court, Friday Feb. 23, 2018 in New York. (Elizabeth Williams via AP) Federal prosecutors revealed that …
  • Noreen and Lester Jessop learn that son Daron and twin daughter, Angela and Aubrey, all have a terminal disease 07 Mar 2018 14:17 Sunday Times A COUPLE has told of their heartbreak at finding out their all three children have a rare terminal disease. The Sun reports Noreen and Lester Jessop’s 10-year-old son Daron and four-year-old twin daughters Angela and Aubrey were diagnosed with a brain …
  • Martin Shkreli ran unmonitored drug trial in Cyprus: court docs 07 Mar 2018 03:32 NYPOST Convicted felon Martin Shkreli ran an unmonitored drug trial in Cyprus in 2014, according to new court documents. The drug trial​ ​–​ ​allegedly held without FDA oversight​ ​– was part of a Retrophin initiative to cure a fatal genetic disease in children …
  • Three Utah siblings are diagnosed with rare terminal disease  07 Mar 2018 00:10 Charleston Daily Mail A couple have described the agony of learning that their three children were diagnosed with a rare terminal disease.   Last summer, Noreen and Lester Jessop's 10-year-old son Daron and four-year-old twin daughters Angela and Aubrey were diagnosed with …
  • ‘Pharma bro’ Martin Shkreli seeks 12 to 18 month sentence, below guidelines 28 Feb 2018 19:12 Raw Story Martin Shkreli, the former drug company executive convicted of defrauding investors in two hedge funds he ran, has asked a federal judge to sentence him to 12 months to 18 months in prison, much less than suggested federal guidelines. Shkreli, 34, has …
  • Retrophin's (RTRX) CEO Steve Aselage on Q4 2017 Results - Earnings Call Transcript 28 Feb 2018 04:53 Seeking Alpha Retrophin, Inc. (NASDAQ:RTRX) Q4 2017 Earnings Conference Call February 28, 2018 4:30 PM ET Executives Chris Cline - IR Steve Aselage - CEO Neil McFarlane - COO Laura Clague - CFO Bill Rote - SVP and Head of Research and Development Analysts Joseph …
  • PCS backs PAN’s suggestion for KDMR unity 21 Feb 2018 17:54 The Borneo Post KOTA KINABALU: Parti Cinta Sabah (PCS) has welcomed the suggestion by Parti Anak Negeri Sabah (PAN) president Datuk Henrynus Amin to unite the Kadazandusun, Murut and Rungus (KDMR) under one banner. Its president, Datuk Seri Panglima Wilfred Bumburing, …
  • Top three posts should be shared, says PKAN 23 Jan 2018 14:53 Daily Express Top three posts should be shared, says PKAN Published on: Tuesday, January 23, 2018 Kota Kinabalu: "All Sabahans especially the Momogun, Bajau Suluk/ Brunei and Chinese must unite and fight together as Anak Negeri and exert our rights under the …
  • ArTara Therapeutics Announces Addition of Randall Marshall, MD as Chief Medical Officer 09 Jan 2018 03:26 MarketWatch.com NEW YORK, Jan 08, 2018 (BUSINESS WIRE) -- ArTara today announces the appointment of Randall Marshall, MD as Chief Medical Officer and President of Research & Development. Dr. Marshall will join as a co-founder of ArTara to provide scientific and …
  • Retrophin's (RTRX) CEO Steve Aselage on Q3 2017 Results - Earnings Call Transcript 11 Nov 2017 12:31 Seeking Alpha Retrophin, Inc. (NASDAQ:RTRX) Q3 2017 Earnings Conference Call November 7, 2017 04:30 PM ET Executives Chris Cline - IR Steve Aselage - CEO Neil McFarlane - COO Laura Clague - CFO Bill Rote - SVP and Head of Research and Development Analysts Dae Gon - …
  • TM3 Therapeutics Debuts with Publication of In Vivo Proof of Concept Data for Lead Compound in Treating Pantothenate Kinase-Associated Neurodegeneration 13 Sep 2017 09:02 PharmiWeb.com TM3 Therapeutics Posted on: 13 Sep 17 TM3 Therapeutics, a biopharmaceutical company focused on developing metabolite replacement therapies for rare, genetic neurological diseases, today announced the publication of novel preclinical data on its lead …
  • Retrophin to Present at September Investor Conferences 11 Sep 2017 20:41 MarketWatch.com SAN DIEGO, Sep 11, 2017 (GLOBE NEWSWIRE via COMTEX) -- Retrophin, Inc. RTRX, +0.25% today announced that Stephen Aselage, chief executive officer, will present at two upcoming investor conferences in New York City, including: Cantor Fitzgerald Global …
  • Clinical trial in St. Louis could save local girl’s life 26 Aug 2017 01:50 KTVI Please enable Javascript to watch this video ST. LOUIS – Annaliese Hupp suffers from a debilitating neurodegenerative disorder known simply as PKAN. The 8-year-old relies on a ventilator to help her breath and her parents care 24 hours a day. Her body has …
  • Retrophin Inc Has Returned 28.1% Since SmarTrend Recommendation (RTRX) 22 Aug 2017 05:38 Tradingcharts.com Aug 21, 2017 (SmarTrend(R) Spotlight via COMTEX) -- SmarTrend identified an Uptrend for Retrophin Inc (NASDAQ:RTRX) on June 19th, 2017 at $18.41. In approximately 2 months, Retrophin Inc has returned 28.14% as of today's recent price of $23.59. In the …
  • Retrophin: Updates To Thesis 21 Aug 2017 18:42 Seeking Alpha Shares of Retrophin (NASDAQ:RTRX) have climbed by around 50% since I first started covering the company. Year to date, the share price has risen by nearly 25%. Key elements of the bull thesis in my most recent entry included the following: An $800 million …
  • Grandmother opens up about grandson's terminal illness 14 Aug 2017 22:54 Charleston Daily Mail Erin Heasley started noticing something was wrong with her son, Riley, when he was only nine months old in 2009. He was not developing at the same rate as other babies his age in Longmont, Colorado. He started sitting up far later than he should have done …
  • Ride for Riley to benefit research into Longmont boy's rare disease 13 Aug 2017 16:59 The Daily Camera If you go What: Ride for Riley When: 10 a.m. Saturday Where: Starts at Garden Gate Cafe, 7960 Niwot Road Cost: $25 per vehicle and $10 per additional poker tally card More info: bit.ly/2uwzbLU A Longmont family is hoping to put a dent in a $2 million …
  • Retrophin's (RTRX) CEO Steve Aselage on Q2 2017 Results - Earnings Call Transcript 11 Aug 2017 20:25 Seeking Alpha Retrophin, Inc. (NASDAQ:RTRX) Q2 2017 Earnings Conference Call August 9, 2017 4:30 PM ET Executives Chris Cline – Vice President-Investor Relations Steve Aselage – Chief Executive Officer Bill Rote – Senior Vice President and Head-Research and Development …

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