Amyotrophic Lateral Sclerosis (ALS)

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FDA Approves Radicava (edaravone) to Treat ALS

Regenerative Neurobiology

ALS Treatment Updates

  • Dan Haar: Jay Fishman’s Travelers Legacy Combines Details With Vision 20 Jun 2017 19:03 Hartford Courant Hours after some of the people closest to Jay S. Fishman gathered to dedicate a memorial garden for past champions in Fishman's honor, Tina Sabbatini happened by the new plaque, surrounded by red roses. The dignitaries were long gone. By the afternoon …
  • Bioinformatics and Advanced Analytics Powering Drug Discovery, 2017 Report - Research and Markets 19 Jun 2017 17:03 PharmiWeb.com Research and Markets Posted on: 19 Jun 17 Research and Markets has announced the addition of the "Bioinformatics and Advanced Analytics Powering Drug Discovery" report to their offering. The Drug Discovery TechVision Opportunity Engine (TOE) …
  • The Bannons also bicycle the Tri-State Trek in honor of their brother, Chuck, who died of ALS in 2009 19 Jun 2017 11:02 www.vindy.com Published: Mon, June 19, 2017 @ 12:05 a.m. By William K. ALCORN alcorn@vindy.com YOUNGSTOWN Breen O. Bannon and his sister, Lisa Bannon Steinmetz, leaders and founders of Crush ALS/Team Bannon, received encouraging news as they prepare for the team’s …
  • First generic Strattera for ADHD approved 14 Jun 2017 06:41 Modern Medicine FDA has approved the first generic versions of Strattera (atomoxetine) for the treatment of attention deficit/hyperactivity disorder (ADHD). Read: Costly new ALS treatment approved According to the Diagnostic and Statistical Manual of Mental …
  • New drug therapy could improve brain function and life expectancy of ALS patients 25 May 2017 07:52 Medical Xpress Ben-Gurion University of the Negev (BGU) researchers are developing a new therapy for Amyotrophic Lateral Sclerosis (ALS) using part of an existing FDA-approved drug that restores the central nervous system's (CNS) immune defenses and increases life …
  • FDA expands cystic fibrosis treatment 22 May 2017 21:54 Modern Medicine FDA expanded the use of ivacaftor (Kalydeco, Vertex Pharmaceuticals) to treat cystic fibrosis. “Many rare cystic fibrosis mutations have such small patient populations that clinical trial studies are not feasible,” said Janet Woodcock, MD, director of FDA …
  • Terminal Patients Can Use Experimental Drugs Under ‘Right to Try’ Law 16 May 2017 06:41 KTXL Please enable Javascript to watch this video SACRAMENTO -- Photographs and mementos from 28 years of fighting fires cover the walls of Mike Debartoli’s home in Tracy. Memories, from a career cut short. “I can talk, I can think, I can swallow, and I can …
  • Stem cell transplants may advance ALS treatment by repair of blood-spinal cord barrier 15 May 2017 14:54 Medical Xpress An MRI with increased signal in the posterior part of the internal capsule which can be tracked to the motor cortex consistent with the diagnosis of ALS. Credit: Frank Gaillard/Wikipedia Researchers at the University of South Florida show in a new …
  • ALS Treatment Drug Approved by FDA 10 May 2017 08:21 Occupational Health & Safety ALS Treatment Drug Approved by FDA Radicava has been approved to treat patients with ALS, commonly referred to as Lou Gehrig's disease. The FDA announced it has approved Radicava to treat patients with amyotrophic lateral sclerosis (ALS), commonly …
  • Costly new ALS treatment approved 10 May 2017 03:43 Modern Medicine FDA recently approved the first new treatment for amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, in more than 20 years. However, edaravone (Radicava, Mitsubishi Tanabe Pharma America), will cost more than $145,000 annually, …

 

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ALS Groups

 

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ALS Updates

  • Letters to the editor: School funding, thanks to volunteers 24 Jun 2017 11:50 Courier News School funding reform 'a victory' School funding reform in Senate Bill 1 is a victory for Aurora students and students throughout DuPage, Kane, Kendall and Will counties. As president of the Quad County Urban League, I care about justice and …
  • Mary Valastro, mother of ‘Cake Boss’ star, 69 24 Jun 2017 05:41 Boston Herald HOBOKEN, N.J. — The mother of “Cake Boss” reality star Buddy Valastro has died. Mary Valastro was 69 years old. He announced on Instagram on Thursday that his mother’s “battle with ALS has ended.” He wrote that she is no longer suffering and he hopes that …
  • Letters to the editor: STEPS program, school funding, volunteers thanked 24 Jun 2017 01:57 Beacon News District 204 decision divides disabled We are parents from the District 204 STEPS program. We received an email from Dr. Karen Sullivan on June 8 stating that she would be dividing our adult students with disabilities into the three local high schools for …
  • 'Cake Boss' star 'crushed' by mother's death after long ALS battle 23 Jun 2017 17:13 MSN Entertainment Click to expand UP NEXT Buddy Valastro‘s mother Mary has died, the Cake Boss star’s rep confirm. She was 69. “Mary took a turn yesterday, and Buddy rushed back to New Jersey last night to be by her side,” Valastro’s rep tells PEOPLE in an exclusive …
  • Mother of 'Cake Boss' star, 69, dies after battle with ALS 23 Jun 2017 13:13 Washington Times HOBOKEN, N.J. (AP) - The mother of “Cake Boss” reality star Buddy Valastro has died. Mary Valastro was 69 years old. He announced on Instagram on Thursday that his mother’s “battle with ALS has ended.” He wrote that she is no longer suffering and he hopes …
  • Chickasha ALS Patient Gets His Voice Back Through VisuALS 23 Jun 2017 12:02 KWTV OKLAHOMA CITY - Many families know when a loved one has Lou Gehrig’s disease, it can be difficult. One ALS patient in Chickasha is finding a way to overcome the obstacles. Carl Phelps is turning 65 this year. The last three years have been a struggle …
  • Show Us Your Wall: If These Walls Could Talk? They Do 22 Jun 2017 18:53 International Herald Tribune The walls before her hang heavily with inspiration. Ms. Nottage pointed to an Ernest Crichlow painting of a young girl resting shyly at a window. “I can imagine her story,” she said. “Is she peering out at the world? Is she hiding? Each time I sit here, I …
  • Lou Gehrig biopic ‘The Luckiest Man’ in the works 22 Jun 2017 18:17 New York Daily News Online A biopic centering on the life and career of Yankees great Lou Gehrig is finally in full swing. The New York Yankees gave their stamp of approval to an authorized in-the-works film project called "The Luckiest Man on the Face of the Earth," …
  • Springfield hosts ‘Batting for Brent’ benefit 22 Jun 2017 08:03 The Journal SPRINGFIELD — All proceeds from an amateur baseball game and silent auction will go to former Springfield Tigers amateur baseball player Brent Weber, his family and his team “Batting for Brent,” in their battle with amyotrophic lateral sclerosis (ALS). …
  • Mexican Describes ALS’ Heavy Toll on Lives of Patients, Loved Ones 22 Jun 2017 03:56 Latin American Herald Tribune MEXICO CITY – A Mexican woman says her mother’s life took a dramatic turn for the worse when she contracted amyotrophic lateral sclerosis (ALS), a disease that left her unable to continue working at a grocery store and do activities she once enjoyed like …
  • Rugby legend Doddie Weir diagnosed with Motor Neurone Disease 21 Jun 2017 21:12 Evening News SUPPORT has poured in for Scottish rugby legend George “Doddie” Weir after he was diagnosed with Motor Neurone Disease (MND). The former British and Irish Lion, who was born in the Capital and educated at Stewart’s Melville, will now join forces with …
  • U.S. Food and Drug Administration (FDA) Approves Botulinum Toxin for Treatment of Lower Limb Spasticity in Adults 21 Jun 2017 08:39 Brownsville Herald (BPT) - Currently the ONLY botulinum toxin approved by the FDA for the treatment of upper and lower limb spasticity in adults and also for the treatment of lower limb spasticity in children ages two and older Spasticity is a condition in which there is an …
  • Unproven Treatments For 'Chronic Lyme Disease' Lead To Severe Infections 20 Jun 2017 21:48 The Huffington Post In a small number but growing number of cases, people in the U.S. have suffered severe bacterial infections, bone damage or a life-threatening condition called septic shock — all because of treatments they received for a condition called “chronic Lyme …
  • Sport24.co.za | Scottish rugby legend diagnosed with MND 20 Jun 2017 18:12 Sport24 Cape Town - Former Scotland, Melrose and Newcastle Falcons lock Doddie Weir has been diagnosed with motor neurone disease. The former British and Irish Lion – who earned 61 caps for Scotland between 1990 and 2000 – has announced his diagnosis to raise …
  • Scottish rugby legend diagnosed with MND 20 Jun 2017 17:55 News Cape Town - Former Scotland, Melrose and Newcastle Falcons lock Doddie Weir has been diagnosed with motor neurone disease. The former British and Irish Lion – who earned 61 caps for Scotland between 1990 and 2000 – has announced his diagnosis to raise …
  • Infantile America 20 Jun 2017 17:11 San Diego Reader Early on in O.B. Playhouse’s production of I Love You, You’re Perfect, Now Change, Tara Sampson, playing one of many, interchangeable female characters in this musical revue of love and dating, leans heavy on the Sexy Baby Voice to (quite effectively) put …
  • When I Die, Let Me Live 20 Jun 2017 15:27 HealthNewsDigest (HealthNewsDigest.com) - The first two-part episode of Lauren Kelly, MD’s podcast, “When I Die, Let Me Live,” is not always an easy listen — but that’s kinda the point. Kelly, who graduated from the Perelman School of Medicine earlier this year, aims to …
  • What we know, don't know and suspect about what causes motor neuron disease 20 Jun 2017 14:46 Medical Xpress Some types of MND start with a loss of grip. But what causes this? Credit: www.shutterstock.com.au Since 2014, the ice bucket challenge, which involves people pouring a bucket of icy water over their heads, has raised awareness and much-needed research …
  • Former Scotland and Lions lock Doddie Weir speaks of battle with Motor Neurone Disease 20 Jun 2017 11:53 Telegraph.co.uk Former Scotland and British and Irish Lions second row and No 8 Doddie Weir has revealed he has been diagnosed with Motor Neurone Disease. The 46-year-old decided to speak publicly about his illness in order to help raise awareness of the condition for …
  • Scotland rugby legend Doddie Weir reveals he has motor neurone disease at age of 46 20 Jun 2017 09:15 Dailyrecord.co.uk Scotland rugby legend George “Doddie” Weir has revealed he has motor neurone disease (MND) at the age of 46. The former British and Irish Lion – who earned 61 caps for Scotland – has announced his diagnosis to raise awareness of the condition for Global …

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[google_news query=’als’ topic=snc topic=t topic=b topic=s topic=m]

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